As One RAce Ends, A New One Begins

Life seemed busy until two-year-old Will had a seizure while grocery shopping with his mom and three-year-old sister Addison. The race began: 911 call, paramedics, needle sticks, tears, brain scans, tumor biopsies, exhaustion, and disbelief.  

What is a choroid plexus carcinoma? A rare, aggressive, malignant brain cancer that originates in the tissue that makes cerebrospinal fluid (CSF), the fluid around the brain and spinal cord.  

A blur of a year, Will survived chemo, the dosing growing stronger and stronger. A stem cell transplant, on repeat times three. Another medical opinion hundreds of miles away, followed by a second and a third. Will battled more seizures, ER visits, and respiratory failure requiring the pediatric ICU for breathing support. Brain radiation, now complete, has stabilized Will enough to be at home today with the help of Hospice.  

Three-year-old Will and his race for a cancer cure, good health, and a bright future is nearing an end. His family is helping him finish his race, yet they also begin a new race: surviving life back at home.  While Will's family is trying to eat, sleep, work, and go to school again, Jane's Fund has paid a year of mortgage, knowing they need their home—and hope—to run their next race.